Interaction with persons with albinism in Kenya, we have noted the following:
- Societal and institutional stigmatization, ignorance and non recognition have relegated PWA’s to obscurity with its attendant misconceived ideas of their identity. This has created low self esteem and identity crisis that has in turn restricted them from exploring and exploiting their full potential.
- The majority of PWA’s is either they are unemployed or are engaged in the informal ‘Jua Kali’ business sector activities that expose them to the sun with adverse effect to their skin. Such exposure has often led to development of skin cancer.
- Majority of parents of people with albinism are single mothers who have been abandoned by their spouses for bearing children with albinism.
- Prolonged exposure to the sun without protection has in many cases resulted in development of skin cancer. I most cases it has been diagnosed too late for treatment to arrest it thereby causing death. Among the survivors, diagnosis and treatment has been too expensive to sustain. They have had to rely on support from benefactors like AFEA. Due to inadequate funds AFEA has only managed to help a few.
- Inferiority complex among PWA’s where they tend to think they can only do certain limited jobs and courses at school or college level.
- Most PWA’s are orphans, in single parent (mother) households, children’s homes or staying with grandparents. They are denied wholesome parental care and attention that children ought to receive.
- Concentration of children with albinism in special schools for the blind even though they can see results in unwholesome socialization and freedom of choice in careers development